In
the U.S. more than 12,000 teenagers used Botox injections
in 2009, and many consider undergoing cosmetic surgery
to improve their looks. To be successful and important,
to lead a fulfilled and happy life, you have to be beautiful,
society tells you.
Lillibeth
Navarro struggled with similar pressures as a teenager.
“All the women in my family were very beautiful.”
Instead, she herself was confined to a wheelchair, having
contracted polio at the age of five. The disease left
its marks on her body, and later, also on her soul.
Her
grandmother kept on telling her that she was “special,”
but as a teenager, she didn’t want to be “special”
– she wanted to be doing all the normal things:
going out with friends, dancing, dating and dreaming
of a future family.
“Every
person has value and dignity,” she says today,
describing how her discovery of God’s personal
love changed her life. To respond to his love she wanted
to show “God’s face to the world,”
and this has remained her life’s work ever since.
After
studying business in the Philippines, she found an opportunity
to pursue journalism in the U.S. In her first job upon
graduation, she became acutely aware of how many things
were not accessible to her and to other disabled people.
Joining a demonstration in Los Angeles in 1985 under
the slogan “Access is a civil right,” she
started to be active in the Disability Rights Movement.
Before long she took on a leadership role.
Her
work today is not limited to speeches and conferences.
As she learned from Focolare founder Chiara Lubich,
“You have to think big for God.” In 2000,
when Lillibeth was asked to open an Independent Living
Center (ILC) in Los Angeles, she agreed without hesitation.
One person in charge was a former supervisor who had
fired her in Los Angeles. “You?” this woman
exclaimed when Lillibeth was introduced to her as the
new founder of the ILC in Los Angeles. “Yes,”
replied Lillibeth, without any bitterness.
In
the nearly 10 years since its opening, the ILC has grown
from 7 to 16 employees, from 7 core programs to 13 programs,
and is a central point for all people with temporary
or permanent disabilities. Its name, CALIF, stands for
“Communities Actively Living Independent and Free,”
and it is located in a historic building on Spring Street
in downtown Los Angeles. It aims to help disabled persons
live independently in their own apartments with assistance.
“In
a nursing home, you can’t even choose at what
time you want to get up or go to bed,” she explains.
“That is not a self-determined life.” Giving
me a warm welcome to the center, Lillibeth guides me
to her office as her colleagues work in other areas
of the center. People arrive to request advice about
government assistance, and information about technical
help available.
“We
have a loan program for equipment that people cannot
afford,” she says. They have also the latest technology
she likes to share with her clients: an app that facilitates
communication for those with speech impediments after
a stroke. “I had a woman in my office who, after
a stroke, thought all was ended, but that’s not
true. Technology is on our side,” she affirms.
“We are always looking for solutions.” To
really effect change, you cannot limit your dedication
to a cause or the group you care about. In LA County,
about 180,000 homecare workers assist people with disabilities.
A few years ago, most of them were working without health
insurance, because although the government paid them,
it did not officially employ them.
“A
lot of the other disabled persons didn’t want
more rights for the homecare workers, because they were
afraid of a possible strike,” Lillibeth explains.
Caught in a dilemma, she prayed about it. She understood
how love could resolve the conflict for her by helping
her think in terms of a “consistent ethic of social
justice.” After sharing this way of thinking,
she got support for the initiative to establish an employer
of record so that personal care attendants can bargain
for better wages and benefits. “The
homecare workers help us every day, and I cannot fight
for my rights at the expense of other people’s,”
she said. Now the workers are better paid and have health
insurance.
She
also tried to reconcile different opinions within the
disability movement because the needs of some disability
groups were opposed to those of others. Eliminating
a barrier for people in wheelchairs, for example, caused
orientation problems for the blind. “If we cannot
understand the needs of others who are disabled, how
can we ask society to understand us?” she asks.
At
the CALIF office, some workers use their lunch break
once a week for a spirituality meeting, sharing their
thoughts and their experiences of living out their faith.
From their faces, one can see that they really enjoy
working here.
Lillibeth
has won several awards, including the Los Angeles County
Commission on Disability Recognition Award in 1999.
She was named “Woman of the Year” by the
California State Legislature – something she would
never have expected when a child, having felt discriminated
against and rejected by others. Then in December 2010,
the Philippine government named her one of 24 Most Outstanding
Filipinos Overseas.
For
her, this is all a result of confiding in God’s
love. “That’s what happens when you use
your talents for something that is bigger than you,”
she says. With her example, she encourages a lot of
people, with and without disabilities. She always tries
to see the positive. “As a disabled person, I
always experience the providence of God.” Lillibeth
feels that Jesus has a special love for people with
disabilities.
“It’s
all so evident in the Gospel,” she points out,
“Jesus would heal the disabled he encountered
everywhere!” But, she adds, “there’s
also meaning in suffering that doesn’t go away
– a permanent disability is a chance to say ‘yes’
to God everyday.” Once, she shared this discovery
with a Muslim colleague in the disability community.
Moved by the story, he began to search the Qu’ran
for a similar story, and was excited to find a verse
where Mohammed encounters a blind person and is corrected
by God to have a change of heart, directing him to give
the blind man honor and respect. “The
dignity of all human life is common ground from which
to start, and also the goal to reach in this change
of attitude toward those with disabilities,” she
explains.
As
she continues the daily struggle with disability, “there
are a lot of things in my heart I still have to change,”
she claims. Her life choices have brought change to
many other hearts as well.
Susanne
Janssen (Living City)
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